Multi-party data sharing and data subjects as beneficiaries: how to accelerate accountable data sharing?

Moderator

  • Sophie Stalla-Bourdillon

Speakers

  • Else Feikje van der Berg
  • Malte Beyer-Katzenberger
  • Alexsis Wintour
  • Denise Amram

Organisation: Computer Law and Security Review

Room: Online 3

Timing: 17:15 - 18:30 on 28 January 2021

Attempts to set up repeatable mechanisms or structures to support the accountable multi-party sharing of personal data have not yet succeeded, although different models are now emerging. The extraordinary situation of the global pandemic makes it crystal clear that there is an urgent need to accelerate the sharing of personal data among different types of
stakeholders, e.g. healthcare providers, social care providers, researchers and public health authorities. However, the danger is that data subject rights will be watered down, and more generally that such data sharing will de facto enable extensive surveillance programmes and irremediably undermine fundamental rights and liberties of data subjects. The purpose of this panel is to discuss barriers to the sharing of personal data as well as necessary safeguards, and explore a variety of emerging multi-party data sharing models across jurisdictions.

• How can we accelerate data sharing between multi parties without watering down data subject rights?
• What are the emerging multi-party data sharing models?
• How do these models compare with each other?
• To what extent arrangements that have been built for health data in the context of the covid crisis can be repeated and generalized?

Moderator

Sophie Stalla-Bourdillon

University of Southampton and Immuta (UK)

Sophie Stalla-Bourdillon is Senior Privacy Counsel and Legal Engineer at Immuta, where she works on analysing and developing solutions to support smart data governance and risk assessment within data analytics environments. Sophie is also a Professor in Information Technology Law & Data Governance at the University of Southampton, where she co-directs the Web Science Institute and conducts interdisciplinary research in the fields of privacy, data protection, data sharing and data governance. Sophie is Editor-in-chief of the Computer Law and Security Review, a leading international journal of technology law, and has also served as a legal and data privacy expert for the European Commission, the Council of Europe, the OCSE, and for the OEDC.

Speakers

Else Feikje van der Berg

Datawallet (DE)

Malte Beyer-Katzenberger

DG CONNECT (EU)

Dr. Malte Beyer-Katzenberger studied law & political sciences at Trier and Aix-en-Provence universities and at the College of Europe, Bruges. In November 2011, he joined the European Commission, DG CONNECT. He is a desk officer working on horizontal questions of data-driven innovation, including open data policies and aspects of data protection.

Alexsis Wintour

Lapin, Jersey

Denise Amram

LIDER Lab - DIRPOLIS Institute, Scuola Superiore Sant’Anna (IT)

Dr. Denise Amram is affiliate researcher at LIDER Lab - DIRPOLIS Institute, Scuola Superiore Sant’Anna (Italy), where she serves as DPO. Coordinator of the Permanent Observatory on Personal Injury Damages and ETHOS, she participates to several H2020 research projects, also as ethical-legal advisor. Adjunct lecturer in Private and Comparative Private Law, she enriched her experience undertaking teaching/research activities both in Italy and abroad, including Université Panthéon-Assas, Panthéon-Sorbonne, Utrecht University, University College Dublin, University of Malta, Columbia Law School. She authored ~100 publications including a book. Interests: fundamental rights protection in the fields of data protection law, family law, tort liability.